Fund Raising for DEBRA
There are so many charities out there to support but the one that touched us most and having had the absolute pleasure of meeting Hollie who has Epidermolysis Bullosa otherwise known as EB, made our decision for us, DEBRA is a charity thats supports those with EB which is a genetic skin blistering disease.
Please take the time to read this short appeal from Hollie's mum
''Where do I start!..
I feel like I've pestered everyone so much in the past for sponsors.. but who wouldn't when at home, i have a child who from a far may look fine at time's, but take away the clothes and dressing and you have open raw wounds, no skin, or maybe blisters. Sometimes the full size of her arms or legs.. unfortunately this is what my Hollie and many other children with EB go through..
These wounds & blisters happen from the slightest knock or friction, which trust me when all you want to do is have a cuddle or pick her up and you manage to catch her by accident.. this basically rips your heart to bits.
it isn't just her knackered shell that's broken, all this continues in her eye's, many a time Hollie has had to sit in a dark room until the blisters have healed, Her mouth, tongue, gums and throat also blister, making eating a very traumatising event, due to this happening, Hollie has had operations to widen her throat and also had a feeding tube fitted into her tummy so she can be fed at night time..
We don't know what the future holds for our Hollie, weather she'll be using a wheel chair full time, whether her fingers and toes will fuse or the one that scares me the most.. the skin cancer.
Ben, Gemma, Donna, Helen Nick, Roz, Marie and Me!! were all donning our trainers and running them few little miles ;) ... (13.1) for this amazing Charity!
All the money raised goes to the Debra Charity, this charity is not government funded, so every penny they have, is raised by them and people like us, Not only does the money go into research, but also pays for her amazing nurses, who travel very long distances to visit families like mine... there is so much more this charity helps us with.. I can't thank them enough.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.''
To donate to Hollie's cause please click the logo below
Here is a link to one of the most powerful documentries I have ever watched . The life story of Johnny Kennedy who was an EB sufferer.